Wednesday, April 27, 2011 by admin.

Sarah Grace finished her time at STP (well, insurance ran out) on Monday.  During her discharge, I was told that Sarah is the most challenging person they have ever worked with.  The challenge is that her motor ability and her cognitive ability are so far apart.

 So now we are challenged to find a placement for school next year that can meet both her her physical needs and her academic needs while keeping in mind her social and emotional needs. 

I am praying that we make a good and wise decision for next year and that God will place a team of people that will help Sarah grow and learn.  I don’t need people who will scratch their heads and give up.  We know Sarah is a huge challenge, so give her the best you’ve got to offer! 

The next few weeks will be a challenge.  Integrating Sarah back into her classroom.  Having meetings about placement and making decisions.

Also, pray for me this summer,as I will be Sarah’s main source of therapy.  I pray that I will be able to integrate things into our daily lives.  I also need to spend some quality time with my other two girls.  I am looking for volunteers who would be willing to come and sit with Sarah (not care for her, I will be there to do that) while I get some things done around the house.  If you are willing, please email me mygirlskhs@yahoo.com.

Thanks and God bless,

Dena

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Wednesday, April 6, 2011 by admin.

Hello Everyone!  So far 2011 has been quite eventful for Sarah Grace.  Toward the end of January, she was hospitalized with a viral upper respiratory infection and urinary tract infection.  After seven days of antibiotics and iv fluids she was home.   She was well for a while, then toward the end of March, she had some terrible congestion and vomiting, so back to Johns Hopkins we went for a 5 day stay.  She had the rhino virus (aka the common cold), but needed the extra iv fluids to keep her metabolism stable.  She is doing much better now and I thank you all for the prayers during those times.

Beginning March 8, Sarah returned to the Specialized Transition Program and Kennedy Krieger for intensive therapy to help with her transition to kindergarten next year.  We are concentrating on getting her better at using her communication device.  We are about 1/2 through her time there.  Unfortunatly she could use much more time in the program, but insurance will not allow it.  She will return to her normal public preschool classroom on April 27.  She will nots be happy about that, she LOVES STP.

We found out this week that insurance has approved a gait trainer for Sarah.  YEAH!    I just hope it is here before cheerleading season begins again.  Sarah Grace had a great time in cheerleading this year.  I will try to get some pictures posted soon.

God bless and take care,

Dena

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