Sarah Grace's Blog

update

admin — Sat, 17 Mar 2012 00:51:22 +0000

Sarah Grace is home now… she got home about 700pm tonight… Thanks for all the prayers

Sarah is in the hospital

admin — Wed, 14 Mar 2012 21:55:26 +0000

Sarah developed a fever over night. Although she wasn’t thrilled about going into the hospital, we did get to play bingo this afternoon and she won a pillow pet and a princess doll. During bingo her fever spiked to just over 103. She was given motrin, but she vomited it back up, so she has been given iv tylenol and a med to help with nausea. A little while later she was given motrin again. Hopefully her fever will go down soon.

Sarah has a bad cold :(

admin — Tue, 21 Feb 2012 11:20:13 +0000

Sarah missed 4 days of school last week and will be missing at least one this. She has a bit of congestion that was making her vomit. Thankfully there has been no fever, so the docs are letting her stay home on a sick day formula, but do not want her in school while her immune system is down. Although I am grateful we have avoided the hospital, it is tiring having to feed her every 4 hours around the clock.

On a different note, we have seen some wonderful progress in school this year. Thankfully, she has gotten into a school that is willing to learn her communicator and work with her on it. She is using it more consistently and appropriately. Also, she has really gotten good in her gait trainer (walker). I think she runs more than she walks. She is doing well academically and showing progress on typical kindergarten curriculum.

I’ll be writing again soon about a blessing that has happened to allow Sarah to get some needed therapies at Kennedy Krieger.

Have a blessed day!

Sarah Lost Her First Tooth!!

admin — Fri, 21 Oct 2011 18:09:35 +0000

Sarah lost her first tooth while she slept last night. Just before 5 am this morning we heard her giggling in her bedroom. When I went in to see her, I noticed a gap in her smile. Needless to say she is thrilled about the tooth fairy coming tonight, though we will have to just leave a note since we are pretty sure she swallowed her tooth.

Update on Sarah Grace

admin — Wed, 28 Sep 2011 13:49:58 +0000

We have been able to avoid the hospital this time around. Of course I think it was more stressful to have her home in some ways. Meds every 3 hours around the clock and extra fluids didn’t allow for much rest on my part. We did take her to the pediatrician with her sister yesterday. Kaitlyn tested positive for strep, so she and Sarah were both put on antibiotics. They seem to be much better today, though Sarah has a bit of congestion still. The two of them should be back in school by the end of the week.

Thanks again for all the thoughts and prayers. It has been a crazy September here in the Handy house. Each girl took turns taking a week to be sick, then Sarah and Kaitlyn get sick together this week. Sarah has missed so much school that they are getting a tutor for her.

Sick Again

admin — Sun, 25 Sep 2011 19:20:38 +0000

Sarah has developed a fever today. The docs are letting us keep her at home on fever meds and extra fluids for now. We have never followed a sick day regimin at home, so we are treading on new ground. I am happy to keep her home and away from the germy hospital, but I am nervous because I know how important it is for her to get those extra fluids when she is not sick. I am praying she will continue to tolerated feeds.

Sarah Grace is Home from the hospital

admin — Tue, 20 Sep 2011 00:04:04 +0000

Sarah came home from the hospital on Saturday. It seems she and her sisters have all gotten this parainfluenza virus in turn. Two weeks ago, Kaitlyn missed a whole week of school because of it. Last week, it sent Sarah to the hospital. And today, Hope started with fever and a sore throat. I guess I can be thankful they didn’t all get it at the same time.

A great big thank you to all of you who have prayed for Sarah Grace through this illness. She still has a cough and congestion that we are watching to make sure it stays lose and in her upper airway.

On a good note, she was found to have grown a bit since her last visit to Johns Hopkins and we left the hospital with a tweeked formula recipe to reflect her growth. She is in the 50%ile in height and weight. For those of you who are interested, I have attached Sarah’s formula and meds sheet.

Sarah’s doing better

leannweaver — Fri, 16 Sep 2011 13:20:04 +0000

From Dena’s Text this morning:

I haven’t heard officiall yet, but I think we will be here another day. Sarah had some vomit last night because of coughing and they are being cautious of aspiration and pnuemonia. All her cultures (Bacterial and viral) have come back negative for the things they tested for. I’ll keep you posted.

Sarah’s at Johns Hopkins this morning

leannweaver — Wed, 14 Sep 2011 13:11:25 +0000

Dena and Sarah are at Johns Hopkins this morning. Sarah is running a 102 degree fever and did not keep down her am feeding. Please put Sarah and Dena in your prayers for a quick turn around and recovery. I will try to keep everyone updated on Sarah’s progress. God’s Grace and Peace to all!

Sarah Grace is not feeling so well

admin — Tue, 13 Sep 2011 21:57:15 +0000

Well, I kept Sarah Grace home from school today. She complained of a sore throat yesterday, so I took her to the pediatrician. Her sister missed a whole week of school last week due to tonsilitis. The doctor did not see anything in Sarah’s throat or ears, but did hear some crackle in her chest, so she gave us a perscription for antibiotics. Today, she ran a low grade fever, 99.4.

So we are watching her and praying her fever does not go above 100 and she continues to tolerate her gtube feedings because that will send her to the hospital.